De observación
Los investigadores hacen un seguimiento de los resultados de salud a lo largo del tiempo en grupos de participantes para buscar patrones que nos ayuden a comprender mejor una enfermedad.
Prepare-NS
Preparing a Clinical Outcomes Assessment Set for Nephrotic Syndrome
Breve descripción
Researchers from the University of Michigan and Northwestern University are studying people's experiences with swelling caused by Nephrotic Syndrome. Interviews with patients (child and adult) and parents of young children will be conducted. The information collected from the interviews will be used to develop a survey to use when testing new medications for Nephrotic Syndrome.
Please consider participating in a 1-hour long interview with the Prepare-NS research study to discuss children and adults experiences with swelling.
Médico del ensayo/Coordinador del estudio
Vivian Kurtz
Correo electrónico Número de teléfono 734-936-3590Nombre del sitio
University of Michigan
University of Michigan, Ann Arbor, MI 48109
Nombre del patrocinador
University of Michigan
Nombre del fármaco del estudio
N/A
Matrícula estimada
150 participants
Fecha estimada de finalización
April 2026
De observación
Los investigadores hacen un seguimiento de los resultados de salud a lo largo del tiempo en grupos de participantes para buscar patrones que nos ayuden a comprender mejor una enfermedad.
Prepare-NS
Preparing a Clinical Outcomes Assessment Set for Nephrotic Syndrome
Breve descripción
Researchers from the University of Michigan and Northwestern University are studying people's experiences with swelling caused by Nephrotic Syndrome. Interviews with patients (child and adult) and parents of young children will be conducted. The information collected from the interviews will be used to develop a survey to use when testing new medications for Nephrotic Syndrome.
Please consider participating in a 1-hour long interview with the Prepare-NS research study to discuss children and adults experiences with swelling.
El ensayo es para personas con
Focal Segmental Glomerulosclerosis (FSGS), Membranous Nephropathy, Minimal Change Disease, Nephrotic Syndrome, IgM Nephropathy
Objetivo del estudio
The researcher's goal is to produce core outcome sets of patient-rated and observer reported Fluid Overload (edema) measures that can be applied across the fluid overload severity continuum, fit to help drug development in this area.
Qué implica para el paciente?
Behavioral interviews
Sobre el medicamento o la intervención
N/A