Especialistas en NephCure
La siguiente es una lista de médicos que se especializan en el tratamiento
enfermedades renales raras que derraman proteínas como FSGS, Nefropatía iga,
y Síndrome Nefrótico. Aunque no está completa, esta es una lista de trabajo
que se expandirá a medida que recibamos nominaciones de forma continua.
Las solicitudes se revisan y puntan con una lista de pre-
criterios de selección determinados.
Especialistas en NephCure
Agnieszka (Agnes) Swiatecka-Urban, MD, FASN
1204 W. Main Street
Charlottesville VA 22903
Ahmed Awad, DO, FASN
Clinical Research Consultants
3930 Washington Street
Kansas City MO 64111
Alessia Fornoni, MD, PhD
1580 Northwest 10th Avenue
Miami FL 33136
Ali G. Gharavi, MD
Columbia University Medical Center
51 Audobon Avenue
New York NY 10032
Ali Poyan Mehr, MD
Kaiser Permanente Medical Center
2238 Geary Boulevard
San Francisco CA 94115
Alicia Neu, MD
200 North Wolfe Street
Baltimore MD 21287
Ambarish Athavale, MBBS, MD
Cook County Health
Professional Building, 5th Floor, Department of Nephrology
1950 West Polk Street
Chicago IL 60612
Amy Katherine Mottl, MD, MPH
101 Manning Drive; CB#7155
Chapel Hill NC 27599-7155
Ana L. Paredes, MD
6200 Sunset Drive
South Miami FL 33143
Andrea L. Oliverio, MD
University of Michigan
1500 E. Medical Center Dr.
Ann Arbor MI 48109
Andrew Bomback, MD, MPH
622 West 168th Street
New York NY 10032
Anna Greka, MD, PhD
75 Francis Street
Boston MA 02115
Anne Pesenson, MD, FASN
904 7th Avenue
Seattle WA 98104
Ashraf El-Meanawy, MD, MS, PhD, FASN
Medical College of Wisconsin
8701 Watertown Plank Road
Milwaukee WI 53226
Brad H. Rovin, MD
Ohio State University Wexner Medical Center
Nephrology Division, Fourth Floor
1664 Neil Avenue
Columbus OH 43210
Carl Peter Walther, MD, MS, FASN
One Baylor Plaza
Houston TX 77030
Carla Nester, MD, MS
200 Hawkins Drive
Iowa City IA 52242
Carlos Mercado, MD
624 South 1000 East
St. George UT 84790
Carolyn Abitbol, MD
1611 NW 12th Avenue (SW 220)
Miami FL 33136
Cheryl Sanchez, MD
Pediatrics, 11175 Campus Street
Loma Linda CA 92354
Chia-shi Wang, MD, MS
Children's Healthcare of Atlanta
2015 Uppergate Drive Northeast
Atlanta GA 30322-1015
Christie P. Thomas, MBBS
University of Iowa Carver College of Medicine
Division of Nephrology, Department of Internal Medicine
200 Hawkins Drive
Iowa City IA 52242
Christine B. Sethna, MD, EdM
Hofstra Northwell School of Medicine
Feinstein Institute for Medical Research
269-01 76th Avenue
New Hyde Park NY 11040
Cybele Ghossein, MD
675 North St. Claire
Chicago IL 60611
Dana V. Rizk, MD
1720 2nd Avenue South
Birmingham AL 35294-0007
Debbie S. Gipson, MD, MS
University of Michigan, Division of Nephrology
1500 East Medical Center Drive
Ann Arbor MI 48109
Diego H. Aviles, MD
Children's Hospital New Orleans/ LSU Health Sciences Center
200 Henry Clay Avenue
New Orleans LA 70118
Dorey A. Glenn, MD, MPH
University of North Carolina at Chapel Hill
101 Manning Drive
Chapel Hill NC 27514
Duncan B. Johnstone, MD, PhD, FACP
University of Pittsburgh Medical Center
1218 Scaife Hall
Pittsburgh PA 15261
Elaine Kamil, MD
8700 Beverly Boulevard
Los Angeles CA 90048
Elizabeth Brown, MD
University of Texas Southwestern Medical Center
5323 Harry Hines Boulevard
Dallas TX 75390-9063
Ellen McCarthy, MD
University of Kansas Medical Center
3901 Rainbow Boulevard MS3018
Kansas City KS 66160
Fernando Fervenza, MD, PhD
200 First Street Southwest
Rochester MN 55902
Frederick Kaskel, MD, PhD, FASN
Children's Hospital at Montefiore of the Albert Einstein College of Medicine
111 East 210th Street
Bronx NY 10467
Gabriel Cara-Fuentes, MD, PhD
Children's Hospital Colorado
13123 East 16th Avenue
Aurora CO 80045
George William Burke, III, MD
University of Miami Miller School of Medicine
Highland Professional Building, Suite 510
1801 NW 9th Avenue
Miami FL 33136
Gerald Appel, MD
161 Fort Washington Avenue
New York NY 10032
German Hernandez, MD, FASN, FACP
1310 Murchison Drive
El Paso TX 79902
Gia Oh, MD
501 North Graham Street
Portland OR 97227
Harold M. Szerlip, MD, MS(ED), FACP, FCCP, FASN, FNKF, CCRP
411 North Washington Avenue
Dallas TX 75246
Hilary Hotchkiss, MD
1 Gustave L. Levy Place
New York NY 10029
Howard Lifland, MD
Children's Hospital Los Angeles
121 Park Central Drive
Columbia SC 29203
Howard Trachtman, MD
NYU Langone Health
403 East 34th Street
New York NY 10016
Isa F. Ashoor, MD
LSU Health and Children’s Hospital New Orleans
200 Henry Clay Ave
New Orleans LA 70118
Isabelle Ayoub, MD, MPH, FASN
1664 Neil Avenue
Columbus OH 43210
Jai Radhakrishnan, MD, MS, MRCP
622 West 168 Street
New York NY 10032
James Dylewski, DO
Denver Health
777 Bannock Street
Denver CO 80204
James Tumlin A., MD, FASN
GA Nephrology
595 Hurrican Shoals Road Northeast
Atlanta GA 30046
Jason Kidd, MD
VCU Health
1250 E Marshall St
Richmond VA 23219
Jayanthi Chandar, MD
Division of Pediatric Nephrology, Department of Pediatrics
Miami FL 33181
Jerome Charles Lane, MD
Ann & Robert H. Lurie Children's Hospital of Chicago
225 E Chicago Avenue
Chicago IL 60611
Jessica F. Curley, MD
2055 High Street
Denver CO 80205
Jochen Reiser, MD, PhD
Rush University
1725 West Harrison Street
Chicago IL 60612
Johannes Schlondorff, MD, PhD
Beth Israel Deaconess Medical Center
185 Pilgrim Road
Boston MA 02215
John C. Lieske, MD
200 First Street Southwest
Rochester MN 55905
John Francis O'Toole, MD
Cleveland Clinic
9500 Euclid Avenue
Cleveland OH 44195
John R. Sedor, MD
9500 Euclid Avenue
Cleveland OH 44195
Jonathan Ashley Jefferson, MD, FRCP
University of Washington
1959 Northeast Pacific Street
Seattle WA 98195
Jonathan J. Hogan, MD
3400 Civic Center Boulevard
Philadelphia PA 19104
Joshua J. Zaritsky, MD, PhD
St. Christopher’s Hospital for Children
160 East Erie Avenue
Philadelphia PA 19134
Julie Steinke, MD
Helen DeVos Children's Hospital
35 Michigan Street Northeast
Grand Rapids MI 49503
Kalamathanan Sambandam, MD
5939 Harry Hines Boulevard
Dallas TX 75390-8516
Katherine Dell, MD
Cleveland Clinic Children's
9500 Euclid Avenue
Cleveland OH 44195-0001
Katherine R. Tuttle, MD, FASN, FACP, FNKF
105 West 8th Avenue
Spokane WA 99204
Keisha L. Gibson, MD, MPH
UNC Kidney Center
7024 Burnett Womack Building
Chapel Hill NC 27599
Kenar D. Jhaveri, MD
100 Community Drive
Great Neck NY 11021
Kenneth Lieberman, MD
Hackensack University Medical Center
30 Prospect Avenue
Hackensack NJ 10025
Kevin Meyers, MD, MBBCh
Children's Hospital of Philadelphia
Pediatric Nephrologist, Department of Pediatrics
3401 Civic Center Boulevard
Philadelphia PA 19104
Kimberly Reidy, MD, FAAP
The Children's Hospital at Montefiore
3415 Bainbridge Avenue
Bronx NY 10467
Kirk Campbell, MD, FASN
One Gustave L. Levy Place
New York NY 10029
Koyal Jain, MD, FASN
7024 Burnett Womack
Chapel Hill NC 27599
Ladan Zand, MD
University of Minnesota
717 Delaware Street SE
Minneapolis MN 55414
Larry Greenbaum, MD, PhD
Emory University
2015 Uppergate Drive Northeast
Atlanta GA 30322
Laura H. Mariani, MD, MS
1500 East Medical Center Drive
Ann Arbor MI 48109
Lawrence Holzman, MD
University of Pennsylvania, Perelmen Center for Advanced Medicine
3400 Civic Center Boulevard
Philadelphia PA 19104
Lawrence Milner, MD
800 Washington Street
Boston MA 02111
Leonardo V. Riella, MD, PhD
Massachusetts General Hospital
55 Fruit Street
Boston MA 02114
Leticia Rolon, MD
400 Parnassus Avenue
San Francisco CA 94143
Mahmoud Kallash, MD
Nationwide Children's Hospital
Nephrology Department, Education Building, 6th floor
700 Children’s Drive
Columbus OH 43205
Manish K. Saha, MD
University of North Carolina, Chapel Hill
7024 Burnett Womack
Chapel Hill NC 27599
Marie Hogan, MD, PhD
Mayo Clinic
200 First Street
Rochester MN 55905
Mark Vishnepolsky, MD
Kidney Specialists of Southern Nevada (KSOSN)
7316 W Cheyenne
Las Vegas NV 89106
Martin Pollak, MD
300 Brookline Avenue
Boston MA 02215
Marva Moxey-Mims, MD, FASN
111 Michigan Avenue, NW
Washington DC 20010
Matthew G. Sampson, MD, MSCE
300 Longwood Ave
Boston MA 02115
Matthias Kretzler, MD
Michigan Medicine Nephrology Clinic
Dept. of Internal Medicine, Division of Nephrology, 3914 Taubman Center
1500 E. Medical Center Drive-SPC5725
Ann Arbor MI 48109-5364
Meryl Waldman, MD
National Institute of Health (NIH)
10 Clinical Center Drive
Bethesda MD 20814
Michael Germain, MD
Bay State Health
100 Wason
Springfield MA 01107
Michael Somers, MD
Boston Children's Hospital
300 Longwood Avenue
Boston MA 02115
Michele Mokrzycki, MD, MS
3411 Wayne Avenue
Bronx NY 10467
Michelle Denburg, MD, MSCE
Children's Hospital of Philadelphia
3401 Civic Center Boulevard
Philadelphia PA 19146
Michelle Rheault, MD
2450 Riveride Avenue
Minneapolis MN 55454
Mindy Banks, MD
2055 High Street
Denver CO 80205
Miriam Chung, MD
5 East 98th Street
New York NY 10029
Pamela S. Singer, MD, MS
Northwell Health
269-01 76th Avenue
New Hyde Park NY 11040
Patrick N. Cunningham, MD
University of Chicago
5841 South Maryland Ave.
Chicago IL 60637
Patrick Nachman, MD, FASN
717 Delaware Street Southeast
Minneapolis MN 55414
Paul Brakeman, MD, PhD
1825 4th Street, 6th Floor
San Francisco CA 94158
Paul G. Schmitz, MD
Colorado Kidney Care
10103 Ridge Gate Parkway
Lone Tree CO 80124
Pietro Canetta, MD, MS
161 Fort Washington Avenue
New York NY 10032
Raed Bou Matar, MD
Cleveland Clinic Children's
8950 Euclid Avenue
Cleveland OH 44106
Rajeev Raghavan, MD, FASN
7200 Cambridge Street
Houston TX 77030
Rasheed Gbadegesin, MD, MBBS
Duke University Medical Center,
Erwin Road
Durham NC 27710
Raymond K. Hsu, MD, MAS
400 Parnassus Avenue
San Francisco CA 94143-0532
Richard Lafayette, MD, FACP
Stanford Hospital and Clinics
300 Pasteur Drive
Stanford CA 94305
Robert P. Woroniecki, MD, MS
100 Nicolls Road
Stony Brook NY 11794
Samir El-Dahr, MD
1430 Tulane Avenue
New Orleans LA 70012
Samir V. Parikh, MD
Ohio State University Medical Center
395 W. 12th Avenue
Columbus OH 43210
Sangeeta Hingorani, MD, MPH
4800 Sandpoint Way Northeast
Seattle WA 98105
Saravanan Balamuthusamy (Bala), MD, FASN
PPG Health
1000 West Cannon Avenue
Fort Worth TX 76104
Scott E. Wenderfer, MD, PhD, FASN
6701 Fannin Street
Houston TX 77030
Sharon Adler, MD, FASN
Harbor-UCLA Medical Center
1971 Stradella Road
Los Angeles CA 90077
Shikha Wadhwani, MD, MS
676 North St. Clair Street
Chicago IL 60611
Stanley Jordan, MD
Cedars Sinai Medical Center
8900 Beverly Boulevard
West Hollywood CA 90048
Stephen M. Korbet, MD, MACP, FASN
Rush University Medical Center
1426 W Washington Blvd
Chicago IL 60607
Steven Alexander, MD
300 Pasteur Drive
Stanford CA 94305-5208
Stuart Shankland, MD, MBA
University of Washington
1959 NE Pacific Avenue
Seattle WA 98195
Suneel Udani, MD, MPH, FASN
911 North Elm Street
Hinsdale IL 60521
Susan Massengill, MD
Atrium Health Levine Children's Hospital
Levine Children's Specialty Center, Suite C
1001 Blythe Boulevard
Charlotte NC 28203
Tammy Brady, MD, PhD
200 North Wolfe Street
Baltimore MD 21287
Tarak Srivastava, MD, FASN
Children's Mercy Hospital
2401 Gillham Road
Kansas City MO 64108
Tej K. Mattoo, MD
Wayne State University
2301 Beaubien Blvd
Detroit MI 48201
Theodore I. Steinman, MD
330 Brookline Avenue
Boston MA 02215
Tingting Li, MD, MSCI
660 South Euclid Avenue
St.Louis MO 63110
Vasil Peev, MD
Rush University Medical Center
1725 West Harrison Street
Chicago IL 60612
Vimal Derebail, MD, MPH, FASN
7024 Burnett-Womack
Chapel Hill NC 27599
Wai Lang Lau, MD
University of Florida
1600 Archer Road
Gainesville FL 32610
William Smoyer, MD
Nationwide Children's Hospital
The Research Institute at Nationwide Children's Hospital
700 Children's Drive, Room W303
Columbus OH 43205
Ying Maggie Chen, MD, PhD
660 South Euclid Avenue
St. Louis MO 63110
Preguntas frecuentes
El síndrome nefrótico no es una enfermedad en sí misma, sino un grupo de signos y síntomas que resultan del daño en la parte del riñón que filtra la sangre (glomérulos).
Los síntomas comunes incluyen:
- Orina espumosa (llamada proteinuria) causada por el «derrame» de proteínas en la orina
- Hinchazón severa en partes del cuerpo, más notable alrededor de los ojos, manos, pies y abdomen (llamado edema)
- Aumento de peso debido a la acumulación de líquido adicional
- Fatiga
- Pérdida de apetito
- Bajos niveles de proteínas en sangre (hipoalbuminemia)
- Niveles de grasa y colesterol en sangre más altos de lo normal (hiperlipidemia)
El síndrome nefrótico generalmente se puede diagnosticar con un análisis de orina.
El síndrome nefrótico puede ser de naturaleza «primaria» o «secundaria».
Las enfermedades que afectan solo a los riñones se denominan causas primarias del síndrome nefrótico. Los médicos a menudo llaman a estas enfermedades «idiopáticas», lo que significa que surgen de una causa desconocida. Algunas de estas enfermedades incluyen:
- Enfermedad de cambios mínimos (ECM/MCD): más común en los niños
- Glomeruloesclerosis focal y segmentaria (GSFS/FSGS)
- Nefropatía membranosa (NM/MN): más común en adultos
- Nefropatía por IgA (IgAN)
El síndrome nefrótico secundario es causado por una condición sistémica subyacente como diabetes, lupus, VIH y otras.
Kidney Health Gateway es un sitio web que pertenece y es operado por NephCure Kidney International. El objetivo de este sitio web es ayudar a los pacientes con formas raras de síndrome nefrótico primario a conectarse con la atención de expertos y las opciones de tratamiento de vanguardia. Al responder algunas preguntas sobre usted o la condición de su ser querido, podemos brindarle una lista de ensayos clínicos o médicos expertos en su área.
Si tiene preguntas adicionales, visite NephCure.org o envíe un correo electrónico a Info@NephCure.org.