Especialistas en NephCure
La siguiente es una lista de médicos que se especializan en el tratamiento
enfermedades renales raras que derraman proteínas como FSGS, Nefropatía iga,
y Síndrome Nefrótico. Aunque no está completa, esta es una lista de trabajo
que se expandirá a medida que recibamos nominaciones de forma continua.
Las solicitudes se revisan y puntan con una lista de pre-
criterios de selección determinados.
Especialistas en NephCure
Abdallah Geara, MD
University of Pennsylvania
3400 Civic Center Blvd.
Philadelphia, PA 19104
Agnieszka (Agnes) Swiatecka-Urban, MD, FASN
1204 W. Main Street
Charlottesville, VA 22903
Ahmed Awad, DO, FASN
Clinical Research Consultants
3930 Washington Street
Kansas City, MO 64111
Alessia Fornoni, MD, PhD
1580 Northwest 10th Avenue
Miami, FL 33136
Ali G. Gharavi, MD
Columbia University Medical Center
51 Audobon Avenue
New York, NY 10032
Ali Poyan Mehr, MD
Kaiser Permanente Medical Center
2238 Geary Boulevard
San Francisco, CA 94115
Alicia Neu, MD
200 North Wolfe Street
Baltimore, MD 21287
Ambarish Athavale, MBBS, MD
University of California at San Diego
Professional Building, 5th Floor, Department of Nephrology
200 W. Arbor Drive, Mail Code 8409
San Diego, CA 92103
Amy Katherine Mottl, MD, MPH
100 Eastowne Drive
Chapel Hill, NC 27599
Ana L. Paredes, MD
6200 Sunset Drive
South Miami, FL 33143
Andrea L. Oliverio, MD
University of Michigan
1500 E. Medical Center Dr.
Ann Arbor, MI 48109
Andrew Bomback, MD, MPH
622 West 168th Street
New York, NY 10032
Angela Maria Cordoba Hurtado, MD
General Hospital of México Dr. Eduardo Liceaga
148 Balmis Dr.
México City, Mexico 06720
Anne Kouri, MD
2450 Riverside Ave S
Minneapolis, MN 55454
Anne Pesenson, MD, FASN
904 7th Avenue
Seattle, WA 98104
Arun Rajasekaran, MD, FACP, FASN, FNKF
728 Richard Arrington Jr. Blvd.
Birmingham, AL 35233
Ashraf El-Meanawy, MD, MS, PhD, FASN
Medical College of Wisconsin
8701 Watertown Plank Road
Milwaukee, WI 53226
Brad H. Rovin, MD
Ohio State University Wexner Medical Center
Nephrology Division, Fourth Floor
1664 Neil Avenue
Columbus, OH 43210
Bradley P Dixon, MD, FASN
Children's Hospital Colorado
13123 E. 16th Avenue
Aurora, CO 80045
Carl Peter Walther, MD, MS, FASN
One Baylor Plaza
Houston, TX 77030
Carla Nester, MD, MS
200 Hawkins Drive
Iowa City, IA 52242
Carlos Mercado, MD
624 South 1000 East
St. George, UT 84790
Carolyn Abitbol, MD
1611 NW 12th Avenue (SW 220)
Miami, FL 33136
Cheryl Sanchez, MD
Pediatrics, 11175 Campus Street
Loma Linda, CA 92354
Chia-shi Wang, MD, MS
Children's Healthcare of Atlanta
2015 Uppergate Drive Northeast
Atlanta, GA 30322-1015
Christie P. Thomas, MBBS
University of Iowa Carver College of Medicine
Division of Nephrology, Department of Internal Medicine
200 Hawkins Drive
Iowa City, IA 52242
Christine B. Sethna, MD, EdM
269-01 76th Ave
Queens, NY 11040
Crystal Gadegbeku, MD, FASN
Cleveland Clinic Foundation
9500 Euclid Avenue
Cleveland, OH 44195
Cybele Ghossein, MD
676 North Saint Clair Street
Chicago, IL 60611
Cynthia Silva, MD
282 Washington Street
Hartford, CT 06106
Dana V. Rizk, MD
1720 2nd Avenue South
Birmingham, AL 35294-0007
Daniel Cattran, MD, FRCPC
585 University Ave
Toronto, Canada M5G2N2
Diego H. Aviles, MD
Children's Hospital New Orleans/ LSU Health Sciences Center
200 Henry Clay Avenue
New Orleans, LA 70118
Dolon Das, MD
6560 Fannin Street
Houston, TX 77030
Dorey A. Glenn, MD, MPH
University of North Carolina at Chapel Hill
101 Manning Drive
Chapel Hill, NC 27514
Duvuru Geetha, M.B.B.S., M.D.
Johns Hopkins University School of Medicine
301 MASON LORD DRIVE
Baltimore, MD 21224
Elaine Kamil, MD
8700 Beverly Boulevard
Los Angeles, CA 90048
Elizabeth Brown, MD
University of Texas Southwestern Medical Center
5323 Harry Hines Boulevard
Dallas, TX 75390-9063
Ellen McCarthy, MD
University of Kansas Medical Center
3901 Rainbow Boulevard MS3018
Kansas City, KS 66160
Fernando Fervenza, MD, PhD
200 First Street Southwest
Rochester, MN 55902
Frederick Kaskel, MD, PhD, FASN
Children's Hospital at Montefiore of the Albert Einstein College of Medicine
111 East 210th Street
Bronx, NY 10467
Gabriel Cara-Fuentes, MD, PhD
Children's Hospital Colorado
13123 East 16th Avenue
Aurora, CO 80045
Gabriel Contreras, MD, MPH
1120 Nw 14Th Street
Miami, FL 33136
George William Burke, III, MD
University of Miami Miller School of Medicine
Highland Professional Building, Suite 510
1801 NW 9th Avenue
Miami, FL 33136
Gerald Appel, MD
161 Fort Washington Avenue
New York, NY 10032
German Hernandez, MD, FASN, FACP
1310 Murchison Drive
El Paso, TX 79902
Gia Oh, MD
501 North Graham Street
Portland, OR 97227
Heather Reich, MD, PhD
200 Elizabeth Street
Toronto, Canada M5G 2C4
Hilary Hotchkiss, MD
1 Gustave L. Levy Place
New York, NY 10029
Howard Lifland, MD
Columbia Nephrology
3630 Sunset Blvd
West Columbia, SC 29169
Howard Trachtman, MD
University of Michigan
33 Lovell Road
New Rochelle, NY 10804
Ibrahim Nayef Dahbour, MD, MS, FASN
21216 NW Frwy
Cypress, TX 77429
Isa F. Ashoor, MD
300 Longwood Avenue
Boston, MA 02115
Isabelle Ayoub, M.D, MPH, FASN
1664 Neil Avenue
Columbus, OH 43201
Jai Radhakrishnan, MD, MS, MRCP
622 West 168 Street
New York, NY 10032
James Dylewski, DO
Denver Health
777 Bannock Street
Denver, CO 80204
James Tumlin A., MD, FASN
GA Nephrology
595 Hurrican Shoals Road Northeast
Atlanta, GA 30046
Jason Cobb, MD
550 Peachtree Street Northeast
Atlanta, GA 30308
Jason Kidd, MD
VCU Health
1250 E Marshall St
Richmond, VA 23219
Jayanthi Chandar, MD (MBBS), MS.
University of Miami, Miller School of Medicine Professor of Clinical Pediatrics
PO Box 016960 (M714)
Division of Pediatric Nephrology, Department of Pediatrics
Miami, FL 33181
Jerome Charles Lane, MD
Ann & Robert H. Lurie Children's Hospital of Chicago
225 E Chicago Avenue
Chicago, IL 60611
Jochen Reiser, MD, PhD
1717 W. Congress PKWY
Chicago, IL 60612
Johannes Schlondorff, MD, PhD
1664 Neil Ave
Columbus, OH 43210
John C. Edwards, MD, PhD
1008 S. Spring Ave.
St Louis, MO 63110
John C. Lieske, MD
200 First Street Southwest
Rochester, MN 55905
John Francis O'Toole, MD
Cleveland Clinic
9500 Euclid Avenue
Cleveland, OH 44195
John R. Sedor, MD
9500 Euclid Avenue
Cleveland, OH 44195
John Sperati, MD, MHS
1830 E Monument St.
Baltimore, MD 21287
Jonathan Ashley Jefferson, MD, FRCP
University of Washington
1959 Northeast Pacific Street
Seattle, WA 98195
Joseph Thomas Flynn, MD
Seattle Children's Hospital
4800 Sand Point Way
Seattle, WA 98105
Joshua J. Zaritsky, MD, PhD
1919 E Thomas Rd
Phoenix, AZ 85016
Juan C. Kupferman, MD, MPH
Maimonides Medical Center
4802 Tenth Avenue
Brooklyn, NY 11219
Julie Steinke, MD
Helen DeVos Children's Hospital
35 Michigan Street Northeast
Grand Rapids, MI 49503
Kamalanathan Sambandam, MD
5939 Harry Hines Boulevard
Dallas, TX 75390-8516
Kalpesh Patel, MD
18425 Burbank Blvd
Tarzana, CA 91356
Katherine Dell, MD
Cleveland Clinic Children's
9500 Euclid Avenue
Cleveland, OH 44195-0001
Katherine R. Tuttle, MD, FASN, FACP, FNKF
104 W 8th Avenue
Spokane, WA 99204
Keisha L. Gibson, MD, MPH
UNC Kidney Center
7024 Burnett Womack Building
Chapel Hill, NC 27599
Kelly Beers, DO
Albany Medical College
25 Hackett Blvd. MC 69
Albany, NY 12208
Kenar D. Jhaveri, MD
Donald and Barbara Zucker School of Medicine/Northwell Health
Division of Kidney Diseases and Hypertension, 2nd Floor
100 Community Drive
Great Neck, NY 11021
Kenneth Lieberman, MD
Hackensack University Medical Center
30 Prospect Avenue
Hackensack, NJ 10025
Kevin Meyers, MD, MBBCh
Children's Hospital of Philadelphia
Pediatric Nephrologist, Department of Pediatrics
3401 Civic Center Boulevard
Philadelphia, PA 19104
Kimberly Reidy, MD, FAAP
The Children's Hospital at Montefiore
3415 Bainbridge Avenue
Bronx, NY 10467
Kirk Campbell, MD, FASN
One Gustave L. Levy Place
New York, NY 10029
Koyal Jain, MD, FASN
7024 Burnett Womack
Chapel Hill, NC 27599
Ladan Zand, MD
Mayo Clinic Rochester
200 1st St. SW
Rochester, MN 55905
Lama Matni Abdelnour, MD
200 Medical Plaza
Los Angeles, CA 90095
Larry Greenbaum, MD, PhD
Emory University
2015 Uppergate Drive Northeast
Atlanta, GA 30322
Laura Malaga-Dieguez, MD, PhD
403 E 34th Street
New York, NY 10016
Laura H. Mariani, MD, MS
1500 East Medical Center Drive
Ann Arbor, MI 48109
Lawrence Holzman, MD
University of Pennsylvania, Perelmen Center for Advanced Medicine
3400 Civic Center Boulevard
Philadelphia, PA 19104
Lawrence Milner, MD
800 Washington Street
Boston, MA 02111
Leonardo V. Riella, MD, PhD
Massachusetts General Hospital
55 Fruit Street
Boston, MA 02114
Leticia Rolon, MD
400 Parnassus Avenue
San Francisco, CA 94143
Mahmoud Kallash, MD
Nationwide Children's Hospital
Nephrology Department, Education Building, 6th floor
700 Children’s Drive
Columbus, OH 43205
Manish K. Saha, MD
University of North Carolina, Chapel Hill
7024 Burnett Womack
Chapel Hill, NC 27599
Marie Hogan, MD, PhD
Mayo Clinic
200 First Street
Rochester, MN 55905
Mark Vishnepolsky, MD
500 S Rancho
Las Vegas, NV 89106
Martin Pollak, MD
300 Brookline Avenue
Boston, MA 02215
Marva Moxey-Mims, MD, FASN
111 Michigan Avenue, NW
Washington, DC 20010
Matthew G. Sampson, MD, MSCE
300 Longwood Ave
Boston, MA 02115
Matthias Kretzler, MD
Michigan Medicine Nephrology Clinic
Dept. of Internal Medicine, Division of Nephrology, 3914 Taubman Center
1500 E. Medical Center Drive-SPC5725
Ann Arbor, MI 48109-5364
Meryl Waldman, MD
National Institute of Health (NIH)
10 Clinical Center Drive
Bethesda , MD 20814
Michael Braun, MD
1102 Bates Ave
Houston, TX 77030
Michael Germain, MD
Bay State Health
100 Wason
Springfield, MA 01107
Michael Somers, MD
Boston Children's Hospital
300 Longwood Avenue
Boston, MA 02115
Michele Mokrzycki, MD, MS
3411 Wayne Avenue
Bronx, NY 10467
Michelle Denburg, MD, MSCE
Children's Hospital of Philadelphia
3401 Civic Center Boulevard
Philadelphia, PA 19146
Michelle Hladunewich, MD, FRCP(C), M.Sc.
1929 Bayview Avenue
Toronto, Canada M4G 3E8
Michelle Rheault, MD
2450 Riveride Avenue
Minneapolis, MN 55454
Michiel F Schreuder, MD PhD FESPN
Radboudumc Amalia Children's Hospital
Department of Pediatric Nephrology (840)
Geert Grooteplein-Zuid 10
Nijmegen, Netherlands 6500HB
Miriam Chung, MD
5 East 98th Street
New York, NY 10029
Mon-Wei (Sam) Yu, MD
Mount Sinai Hospital
1450 Madison Avenue
New York, NY, 10029
Myda Khalid, MD
Riley Hospital for Children at Indiana University Health, Indiana University School of Medicine
Riley Research Room 220
699 Riley Hospital Drive
Indianapolis, IN 46202
Namrata Gargee Jain, MD
Hackensack University Medical Center
30 Prospect Avenue
Hackensack, NJ 07601
Opeyemi Olabisi, MD, PhD
Duke University Hospital
2301 Erwin Rd
Durham, NC 27710
Ora Yadin, MD
10833 Le Conte Ave
Los Angeles, CA 90095
Orville Newton-Ray Bignall, II, MD, FAAP, FASN
Nationwide Children's Hospital
700 Children's Drive
Columbus, OH 43205
Pamela S. Singer, MD, MS
Northwell Health
269-01 76th Avenue
New Hyde Park, NY 11040
Patrick N. Cunningham, MD
University of Chicago
5841 South Maryland Ave.
Chicago, IL 60637
Patrick Nachman, MD, FASN
717 Delaware Street Southeast
Minneapolis, MN 55414
Paul Brakeman, MD, PhD
1825 4th Street, 6th Floor
San Francisco, CA 94158
Pietro Canetta, MD, MS
161 Fort Washington Avenue
New York, NY 10032
Pranay Kathuria, MD
OU Health
4444 East 41st Street
Tulsa, OK 74135
Prasanth Ravipati, MD
University of Nebraska Medical Center
983040 Nebraska Medical Center
Omaha, NE 68198-3040
Purva Dogra Sharma, MD
Donald and Barbara Zucker School of Medicine/Northwell Health
Division of Kidney Diseases and Hypertension, 2nd Floor
100 Community Drive
Great Neck, NY 11021
Raed Bou Matar, MD
Cleveland Clinic Children's
8950 Euclid Avenue
Cleveland, OH 44106
Rajeev Raghavan, MD, FASN
22999 US Hwy 59 N
Kingwood, TX 77339
Rasheed Gbadegesin, MD, MBBS
Duke University Medical Center,
Erwin Road
Durham, NC 27710
Raymond K. Hsu, MD, MAS
400 Parnassus Avenue
San Francisco, CA 94143-0532
Reza Zonozi, MD
101 Merrimac St.
Boston, MA 02114
Richard Lafayette, MD, FACP
Stanford Hospital and Clinics
300 Pasteur Drive
Stanford, CA 94305
Robert P. Woroniecki, MD, MS
100 Nicolls Road
Stony Brook, NY 11794
Samir El-Dahr, MD
1430 Tulane Avenue
New Orleans, LA 70012
Samir V. Parikh, MD
Ohio State University Medical Center
395 W. 12th Avenue
Columbus, OH 43210
Samira S Farouk, MD, MS, FASN
Icahn School of Medicine at Mount Sinai
1 Gustave Levy Pl
New York, NY 10029
Sangeeta Hingorani, MD, MPH
4800 Sandpoint Way Northeast
Seattle, WA 98105
Saravanan Balamuthusamy (Bala), MD, FASN
PPG Health
1000 West Cannon Avenue
Fort Worth, TX 76104
Sayna Norouzi, MD
Loma Linda University Medical Center
11370 Anderson St
Loma Linda, CA 92354
Scott McEwen, MD, PhD
University of Minnesota
2450 Riverside Ave
Minneapolis, MN 55454
Scott Wenderfer, MD, PhD, FASN
BC Children's Hospital
4480 Oak Street
Vancouver, Canada V6H 3V4
Sean Barbour, MD, MS, MSc
2775 Laurel Street
Vancouver, Canada V5Z 1M9
Sergio Infante, MD
11370 Anderson St.
Loma Linda, CA 92354
Sharon Adler, MD, FASN
Lundquist Research Institute at Harbor-UCLA Medical
1124 W Carson St
Torrance, CA 90502
Shikha Wadhwani, MD, MS
676 North St. Clair Street
Chicago, IL 60611
Shweta Shah, MD, MBBS
1102 Bates St.
Houston, TX 77030
Stanley Jordan, MD
Cedars Sinai Medical Center
8900 Beverly Boulevard
West Hollywood, CA 90048
Stephen M. Korbet, MD, MACP, FASN
Rush University Medical Center
1426 W Washington Blvd
Chicago, IL 60607
Steven Alexander, MD
300 Pasteur Drive
Stanford, CA 94305-5208
Stuart Sprague, DO
NorthShore University HealthSystem
2650 Ridge Avenue
Evanston, IL 60201
Stuart Shankland, MD, MBA
University of Washington
1959 NE Pacific Avenue
Seattle, WA 98195
Suneel Udani, MD, MPH, FASN
911 North Elm Street
Hinsdale, IL 60521
Surabhi Thakar, MD
University of Minnesota
717 Delaware street SE
Minneapolis, MN 55414
Susan Massengill, MD
Atrium Health Levine Children's Hospital
Levine Children's Specialty Center, Suite C
1001 Blythe Boulevard
Charlotte, NC 28203
Syeda Behjat Ahmad, MD
200 Lothrop Street
Pittsburgh, PA 15213
Taewoo Lee, MD, PhD
Saint Louis University Hospital
SLUCare Academic Pavilion Room 2505
St Louis, MO 63110
Tammy Brady, MD, PhD
200 North Wolfe Street
Baltimore, MD 21287
Tarak Srivastava, MD, FASN
Children's Mercy Hospital
2401 Gillham Road
Kansas City, MO 64108
Tej K. Mattoo, MD
400 Mack Avenue
Detroit, MI 48201
Theodore I. Steinman, MD
330 Brookline Avenue
Boston, MA 02215
Tingting Li, MD, MSCI
660 South Euclid Avenue
St.Louis, MO 63110
Vasil Peev, MD
Rush University Medical Center
1725 West Harrison Street
Chicago, IL 60612
Vimal Derebail, MD, MPH, FASN
UNC Kidney Specialty and Transplant Clinic
100 Eastowne Drive
Chapel Hill, NC 27514
Wai Lang Lau, MD
University of Florida
1600 Archer Road
Gainesville, FL 32610
William Smoyer, MD
Nationwide Children's Hospital
The Research Institute at Nationwide Children's Hospital
700 Children's Drive, Room W303
Columbus, OH 43205
Yasar Caliskan, MD
SSM Health Saint Louis University Hospital Specialty Clinic
Suites 302 & 308
3660 Vista Ave.
St. Louis, MO 63110
Yelena Drexler, MD
1120 NW 14th Street
Miami, FL 33136
Ying Maggie Chen, MD, PhD
660 South Euclid Avenue
St. Louis, MO 63110
Yonatan Peleg, MD
676 North St Clair Street
Chicago, IL 60611
Preguntas frecuentes
El síndrome nefrótico no es una enfermedad en sí misma, sino un grupo de signos y síntomas que resultan del daño en la parte del riñón que filtra la sangre (glomérulos).
Los síntomas comunes incluyen:
- Orina espumosa (llamada proteinuria) causada por el «derrame» de proteínas en la orina
- Hinchazón severa en partes del cuerpo, más notable alrededor de los ojos, manos, pies y abdomen (llamado edema)
- Aumento de peso debido a la acumulación de líquido adicional
- Fatiga
- Pérdida de apetito
- Bajos niveles de proteínas en sangre (hipoalbuminemia)
- Niveles de grasa y colesterol en sangre más altos de lo normal (hiperlipidemia)
El síndrome nefrótico generalmente se puede diagnosticar con un análisis de orina.
El síndrome nefrótico puede ser de naturaleza «primaria» o «secundaria».
Las enfermedades que afectan solo a los riñones se denominan causas primarias del síndrome nefrótico. Los médicos a menudo llaman a estas enfermedades «idiopáticas», lo que significa que surgen de una causa desconocida. Algunas de estas enfermedades incluyen:
- Enfermedad de cambios mínimos (ECM/MCD): más común en los niños
- Glomeruloesclerosis focal y segmentaria (GSFS/FSGS)
- Nefropatía membranosa (NM/MN): más común en adultos
- Nefropatía por IgA (IgAN)
El síndrome nefrótico secundario es causado por una condición sistémica subyacente como diabetes, lupus, VIH y otras.
Kidney Health Gateway es un sitio web que pertenece y es operado por NephCure Kidney International. El objetivo de este sitio web es ayudar a los pacientes con formas raras de síndrome nefrótico primario a conectarse con la atención de expertos y las opciones de tratamiento de vanguardia. Al responder algunas preguntas sobre usted o la condición de su ser querido, podemos brindarle una lista de ensayos clínicos o médicos expertos en su área.
Si tiene preguntas adicionales, visite NephCure.org o envíe un correo electrónico a Info@NephCure.org.
