Nephrotic Syndrome Specialists

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Academic Medical Center Pediatric Nephrologist
Pittsburgh, PA
Agnieszka (Agnes) Swiatecka-Urban, MD, FASN

UPMC Children's Hospital of Pittsburgh

University of Pittsburgh School of Medicine

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4401 Penn Avenue

Pittsburgh  PA  15224

Community Practice Adult Nephrologist
Kansas City, MO
Ahmed Awad, DO, FASN

Clinical Research Consultants

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3930 Washington Street

Kansas City  MO  64111

Academic Medical Center Adult Nephrologist
Miami, FL
Alessia Fornoni, MD, PhD

University of Miami

Suite #633

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1580 Northwest 10th Avenue

Miami  FL  33136

Academic Medical Center Adult Nephrologist
New York, NY
Ali G. Gharavi, MD

Columbia University Medical Center

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51 Audobon Avenue

New York  NY  10032

Academic Medical Center Adult Nephrologist
San Francisco, CA
Ali Poyan Mehr, MD

Kaiser Permanente Medical Center

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2238 Geary Boulevard

San Francisco  CA  94115

Academic Medical Center Pediatric Nephrologist
Baltimore, MD
Alicia Neu, MD

The Johns Hopkins University School of Medicine

Room 3065

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200 North Wolfe Street

Baltimore  MD  21287

Academic Medical Center Adult Nephrologist
Chicago, IL
Ambarish Athavale, MBBS, MD

Cook County Health

Professional Building, 5th Floor, Department of Nephrology

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1950 West Polk Street

Chicago  IL  60612

Community Practice Pediatric Nephrologist
South Miami, FL
Ana L. Paredes, MD

Nicklaus Children's Hospital

Suite 303

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6200 Sunset Drive

South Miami  FL  33143

Academic Medical Center Adult Nephrologist
New York, NY
Andrew Bomback, MD, MPH

Columbia University

PH 4-124

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622 West 168th Street

New York  NY  10032

Academic Medical Center Adult Nephrologist
Boston, MA
Anna Greka, MD, PhD

Brigham and Women's Hospital

Harvard Medical School

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75 Francis Street

Boston  MA  02115

Community Practice Adult Nephrologist
Seattle, WA
Anne Pesenson, MD, FASN

The Polyclinic

Nephrology

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904 7th Avenue

Seattle  WA  98104

Academic Medical Center Adult Nephrologist
Milwaukee, WI
Ashraf  El-Meanawy, MD, MS, PhD, FASN

Medical College of Wisconsin

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8701 Watertown Plank Road

Milwaukee  WI  53226

Academic Medical Center Adult Nephrologist
Columbus, OH
Brad H. Rovin, MD

Ohio State University Wexner Medical Center

Division of Nephrology, Ground Floor

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395 West 12th Avenue

Columbus  OH  43210

Academic Medical Center Adult Nephrologist Pediatric Nephrologist
Iowa City, IA
Carla Nester, MD, MS

University of Iowa Stead Family Children's Hospital

4036BT

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200 Hawkins Drive

Iowa City  IA  52242

Community Practice Adult Nephrologist
St. George, UT
Carlos Mercado, MD

Southern Utah Kidney and Hypertension Center

Suite 103

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624 South 1000 East

St. George  UT  84790

Academic Medical Center Pediatric Nephrologist
Miami, FL
Carolyn Abitbol, MD

University of Miami

PO Box 016960 (M714)

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1611 NW 12th Avenue (SW 220)

Miami  FL  33136

Academic Medical Center Pediatric Nephrologist
Atlanta, GA
Chia-shi Wang, MD, MS

Children's Healthcare of Atlanta

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2015 Uppergate Drive Northeast

Atlanta  GA  30322-1015

Academic Medical Center Pediatric Nephrologist
New Hyde Park, NY
Christine B. Sethna, MD, EdM

Hofstra Northwell School of Medicine

Feinstein Institute for Medical Research

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269-01 76th Avenue

New Hyde Park  NY  11040

Academic Medical Center Adult Nephrologist
Chicago, IL
Cybele Ghossein, MD

Northwestern Medicine, Feinberg School of Medicine

Suite 18-275

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675 North St. Claire

Chicago  IL  60611

Academic Medical Center Adult Nephrologist
Birmingham, AL
Dana V. Rizk, MD

University of Alabama at Birmingham

ZRB 614

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1720 2nd Avenue South

Birmingham  AL  35242

Academic Medical Center Pediatric Nephrologist
Ann Arbor, MI
Debbie Gipson, MD, MS

University of Michigan, Division of Nephrology

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1500 East Medical Center Drive

Ann Arbor  MI  48109

Academic Medical Center Adult Nephrologist
Philadelphia, PA
Duncan Johnstone, MD, PhD, FACP

Temple University Health System

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3401 N Broad Street, 4th floor, Outpatient Building

Philadelphia  PA  19140

Academic Medical Center Pediatric Nephrologist
Los Angeles, CA
Elaine Kamil, MD

Cedars-Sinai Medical Center

Suite 1165 West Tower

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8700 Beverly Boulevard

Los Angeles  CA  90048

Academic Medical Center Pediatric Nephrologist
Dallas, TX
Elizabeth Brown, MD

UT Southwestern Medical Center

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5323 Harry Hines Boulevard

Dallas  TX  75390-9063

Academic Medical Center Adult Nephrologist
Rochester, MN
Fernando Fervenza, MD, PhD

Mayo Clinic

Division of Nephrology and Hypertension

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200 First Street Southwest

Rochester  MN  55902

Academic Medical Center Pediatric Nephrologist
Bronx, NY
Frederick Kaskel, MD, PhD, FASN

Children's Hospital at Montefiore of the Albert Einstein College of Medicine

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111 East 210th Street

Bronx  NY  10467

Academic Medical Center Adult Nephrologist
New York, NY
Gerald Appel, MD

Columbia University Medical Center

Room 202 H. Irving Pavillion

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161 Fort Washington Avenue

New York  NY  10032

Community Practice Adult Nephrologist
El Paso, TX
German Hernandez, MD, FASN, FACP

El Paso Kidney Specialists

Suite 100

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1310 Murchison Drive

El Paso  TX  79902

Community Practice Pediatric Nephrologist
Portland, OR
Gia Oh, MD

Legacy Health

Suite 355

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501 North Graham Street

Portland  OR  97227

Community Practice Adult Nephrologist
Dallas, TX
Harold M. Szerlip, MD, MS(ED), FACP, FCCP, FASN, FNKF, CCRP

Dallas Nephrology Associates

Suite 7000

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411 North Washington Avenue

Dallas  TX  75246

Community Practice Adult Nephrologist
Columbia, SC
Howard Lifland, MD

Children's Hospital Los Angeles

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121 Park Central Drive

Columbia  SC  29203

Academic Medical Center Pediatric Nephrologist
New York, NY
Howard Trachtman, MD

NYU Langone Health

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403 East 34th Street

New York  NY  10016

Academic Medical Center Adult Nephrologist
Columbus, AL
Isabelle Ayoub, MD, FASN

Ohio State University Wexner Medical Center-Division of Nephrology

Ground Floor

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395 West 12th Avenue

Columbus  AL  43210

Academic Medical Center Adult Nephrologist
New York, NY
Jai Radhakrishnan, MD, MS, MRCP

Columbia University

PH4124

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622 West 168 Street

New York  NY  10032

Community Practice Adult Nephrologist
Atlanta, GA
James Tumlin A., MD, FASN

GA Nephrology

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595 Hurrican Shoals Road Northeast

Atlanta  GA  30046

Academic Medical Center Adult Nephrologist
Bethesda, MD
Jeffrey Kopp, MD, FASN

NIDDK

Room 3N116

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10 Center Drive

Bethesda  MD  20817

Academic Medical Center Adult Nephrologist
Chicago, IL
Jochen Reiser, MD, PhD

Rush University

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1725 West Harrison Street

Chicago  IL  60612

Academic Medical Center Adult Nephrologist
Rochester, MN
John C. Lieske, MD

Mayo Clinic

Division of Nephrology and Hypertension

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200 First Street Southwest

Rochester  MN  55905

Academic Medical Center Adult Nephrologist
Cleveland, OH
John R. Sedor, MD

Cleveland Clinic Glickman Urology and Kidney Institute

Q7

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9500 Euclid Avenue

Cleveland  OH  44195

Academic Medical Center Adult Nephrologist
Seattle, WA
Jonathan Ashley Jefferson, MD, FRCP

University of Washington

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1959 Northeast Pacific Street

Seattle  WA  98195

Academic Medical Center Adult Nephrologist
Philadelphia, PA
Jonathan J. Hogan, MD

Hospital of the University of Pennsylvania

PCAM 1 South - Nephrology Clinic

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3400 Civic Center Boulevard

Philadelphia  PA  19104

Community Practice Pediatric Nephrologist
Wilmington, DE
Joshua J. Zaritsky, MD, PhD

A.I. duPont Hospital for Children

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1600 Rockland Road

Wilmington  DE  19803

Academic Medical Center Adult Nephrologist
New Orleans, LA
Juan Carlos Q. Velez, MD

Ochsner Medical Center

Clinic Tower, 5th Floor

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1514 Jefferson Highway

New Orleans  LA  70121

Community Practice Pediatric Nephrologist
Grand Rapids, MI
Julie Steinke, MD

Helen DeVos Children's Hospital

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35 Michigan Street Northeast

Grand Rapids  MI  49503

Academic Medical Center Adult Nephrologist
Dallas, TX
Kalamathanan Sambandam, MD

University of Texas Southwestern Medical Center

MC 8516

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5939 Harry Hines Boulevard

Dallas  TX  75390-8516

Academic Medical Center Pediatric Nephrologist
Cleveland, OH
Katherine Dell, MD

Cleveland Clinic Children's

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9500 Euclid Avenue

Cleveland  OH  44195-0001

Academic Medical Center Adult Nephrologist
Spokane, WA
Katherine R. Tuttle, MD, FASN, FACP, FNKF

Providence Healthcare

Suite 6050 W

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105 West 8th Avenue

Spokane  WA  99204

Academic Medical Center Pediatric Nephrologist
Chapel Hill, NC
Keisha L. Gibson, MD, MPH

UNC Kidney Center

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7024 Burnett Womack Building

Chapel Hill  NC  27599

Academic Medical Center Pediatric Nephrologist
Hackensack, NJ
Kenneth Lieberman, MD

Hackensack University Medical Center

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30 Prospect Avenue

Hackensack  NJ  10025

Academic Medical Center Pediatric Nephrologist
Los Angeles, CA
Kevin Lemley, MD, PhD

Children's Hospital Los Angeles

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4650 Sunset Boulevard

Los Angeles  CA  90027

Academic Medical Center Pediatric Nephrologist
Philadelphia, PA
Kevin Meyers, MD, MBBCh

Children's Hospital of Philadelphia

Pediatric Nephrologist, Department of Pediatrics

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3401 Civic Center Boulevard

Philadelphia  PA  19104

Academic Medical Center Pediatric Nephrologist
Bronx, NY
Kimberly Reidy, MD, FAAP

The Children's Hospital at Montefiore

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3415 Bainbridge Avenue

Bronx  NY  10467

Academic Medical Center Adult Nephrologist
New York, NY
Kirk Campbell, MD, FASN

Icahn School of Medicine at Mount Sinai

Box 1243

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One Gustave L. Levy Place

New York  NY  10029

Academic Medical Center Adult Nephrologist
Chapel Hill, NC
Koyal Jain, MD, FASN

UNC Kidney Center

160 Dental Circle, CB 7155

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7024 Burnett Womack

Chapel Hill  NC  27599

Academic Medical Center Pediatric Nephrologist
Atlanta, GA
Larry Greenbaum, MD, PhD

Emory University

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2015 Uppergate Drive Northeast

Atlanta  GA  30322

Academic Medical Center Adult Nephrologist
Ann Arbor, MI
Laura H. Mariani, MD, MS

Michigan Medicine Nephrology Clinic

Taubman Center, 3rd Floor, Reception C

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1500 East Medical Center Drive

Ann Arbor  MI  48109

Academic Medical Center Adult Nephrologist
Philadelphia, PA
Lawrence Holzman, MD

University of Pennsylvania, Perelmen Center for Advanced Medicine

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3400 Civic Center Boulevard

Philadelphia  PA  19104

Academic Medical Center Pediatric Nephrologist
Boston, MA
Lawrence Milner, MD

Tufts Medical Center

Floating Hospital for Children

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800 Washington Street

Boston  MA  02111

Academic Medical Center Pediatric Nephrologist
Columbus, OH
Mahmoud Kallash, MD

Nationwide Children's Hospital

Nephrology Department, Education Building, 6th floor

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700 Children’s Drive

Columbus  OH  43205

Academic Medical Center Adult Nephrologist
Rochester, MN
Marie Hogan, MD, PhD

Mayo Clinic

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200 First Street

Rochester  MN  55905

Academic Medical Center Adult Nephrologist
Boston, MA
Martin Pollak, MD

Beth Israel Deaconess Medical Center

RN 304

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300 Brookline Avenue

Boston  MA  02215

Academic Medical Center Pediatric Nephrologist
Washington, DC
Marva Moxey-Mims, MD, FASN

Children's National Hospital

WW 1.5 - 103

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111 Michigan Avenue, NW

Washington  DC  20010

Academic Medical Center Pediatric Nephrologist
Ann Arbor, MI
Matthew G. Sampson, MD, MSCE

University of Michigan School of Medicine

3560B MSRB2

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1150 West Medical Center Drive

Ann Arbor  MI  48109

Academic Medical Center Adult Nephrologist
Ann Arbor, MI
Matthias Kretzler, MD

Michigan Medicine Nephrology Clinic

Dept. of Internal Medicine, Division of Nephrology, 3914 Taubman Center

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1500 E. Medical Center Drive-SPC5725

Ann Arbor  MI  48109-5364

Academic Medical Center Pediatric Nephrologist
Aurora, CO
Melisha Hanna, MD

Children's Hospital Colorado

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13123 East 16th Avenue

Aurora  CO  80045

Academic Medical Center Pediatric Nephrologist
Boston, MA
Michael Somers, MD

Boston Children's Hospital

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300 Longwood Avenue

Boston  MA  02115

Academic Medical Center Adult Nephrologist
Bronx, NY
Michele Mokrzycki, MD, MS

Montefiore Medical Center

Suite 5-H, Division of Nephrology

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3411 Wayne Avenue

Bronx  NY  New York

Academic Medical Center Pediatric Nephrologist
Philadelphia, PA
Michelle Denburg, MD, MSCE

Children's Hospital of Philadelphia

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3401 Civic Center Boulevard

Philadelphia  PA  19146

Academic Medical Center Pediatric Nephrologist
Minneapolis, MN
Michelle Rheault, MD

University of Minnesota Masonic Children's Hospital

MB680

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2450 Riveride Avenue

Minneapolis  MN  55454

Community Practice Pediatric Nephrologist
Denver, CO
Mindy Banks, MD

Rocky Mountain Pediatric Kidney Center

Suite 270

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2055 High Street

Denver  CO  80205

Academic Medical Center Pediatric Nephrologist
New Hyde Park, NY
Pamela S. Singer, MD, MS

Northwell Health

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269-01 76th Avenue

New Hyde Park  NY  11040

Academic Medical Center Adult Nephrologist
Minneapolis, MN
Patrick Nachman, MD, FASN

University of Minnesota

Division of Renal Diseases and Hypertension

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717 Delaware Street Southeast

Minneapolis  MN  55414

Academic Medical Center Pediatric Nephrologist
San Francisco, CA
Paul Brakeman, MD, PhD

UCSF Benioff Children's Hospital

Gateway Building

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1825 4th Street, 6th Floor

San Francisco  CA  94158

Academic Medical Center Adult Nephrologist
New York, NY
Pietro Canetta, MD, MS

Columbia University Medical Center

HIP-202

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161 Fort Washington Avenue

New York  NY  10032

Academic Medical Center Adult Nephrologist
Houston, TX
Rajeev Raghavan, MD, FASN

Baylor College of Medicine

8B: ROOM A8.288

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7200 Cambridge Street

Houston  TX  77030

Academic Medical Center Adult Nephrologist
Stanford, CA
Richard Lafayette, MD, FACP

Stanford Hospital and Clinics

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300 Pasteur Drive

Stanford  CA  94305

Academic Medical Center Pediatric Nephrologist
Stony Brook, NY
Robert P. Woroniecki, MD, MS

Stony Brook Children's Hospital

HSC-11, Room 060

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100 Nicolls Road

Stony Brook  NY  11794

Academic Medical Center Pediatric Nephrologist
New Orleans, LA
Samir El-Dahr, MD

Tulane University School of Medicine

Children's Hospital of New Orleans

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1430 Tulane Avenue

New Orleans  LA  70012

Academic Medical Center Pediatric Nephrologist
Seattle, WA
Sangeeta Hingorani, MD, MPH

Seattle Childrens Hospital

Division of Nephrology OC9.820

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4800 Sandpoint Way Northeast

Seattle  WA  98105

Academic Medical Center Adult Nephrologist
Fort Worth, TX
Saravanan Balamuthusamy (Bala), MD, FASN

PPG Health

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1000 West Cannon Avenue

Fort Worth  TX  76104

Academic Medical Center Pediatric Nephrologist
Houston, TX
Scott E. Wenderfer, MD, PhD, FASN

Texas Children's Hospital

Mark Wallace Tower, Floor 11

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6701 Fannin Street

Houston  TX  77030

Academic Medical Center Adult Nephrologist
Los Angeles, CA
Sharon Adler, MD, FASN

Harbor-UCLA Medical Center

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1971 Stradella Road

Los Angeles  CA  90077

Academic Medical Center Pediatric Nephrologist
Stanford, CA
Steven Alexander, MD

Stanford University School of Medicine

Department of Pediatrics G306

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300 Pasteur Drive

Stanford  CA  94305-5208

Community Practice Adult Nephrologist
Hinsdale, IL
Suneel Udani, MD, MPH, FASN

Nephrology Associates of Northern Illinois and Indiana (NANI)

Suite 102

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911 North Elm Street

Hinsdale  IL  60521

Academic Medical Center Pediatric Nephrologist
Charlotte, NC
Susan Massengill, MD

Atrium Health Levine Children's Hospital

Levine Children's Specialty Center, Suite C

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1001 Blythe Boulevard

Charlotte  NC  28203

Academic Medical Center Pediatric Nephrologist
Baltimore, MD
Tammy Brady, MD, PhD

Johns Hopkins University

David Rubenstein Child Health Building

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200 North Wolfe Street

Baltimore  MD  21287

Academic Medical Center Pediatric Nephrologist
Kansas City, MO
Tarak Srivastava, MD, FASN

Children's Mercy Hospital

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2401 Gillham Road

Kansas City  MO  64108

Academic Medical Center Adult Nephrologist
Boston, MA
Theodore I. Steinman, MD

Beth Israel Deaconess Medical Center

ST 220

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330 Brookline Avenue

Boston  MA  02215

Academic Medical Center Adult Nephrologist
Chapel Hill, NC
Vimal Derebail, MD, MPH, FASN

UNC Kindey Center

CB#7155

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7024 Burnett-Womack

Chapel Hill  NC  27599

Academic Medical Center Pediatric Nephrologist
Columbus, OH
William Smoyer, MD

Nationwide Children's Hospital

The Research Institute at Nationwide Children's Hospital

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700 Children's Drive, Room W303

Columbus  OH  43205

Academic Medical Center Adult Nephrologist
St. Louis, MO
Ying Maggie Chen, MD, PhD

Washington University School of Medicine

Campus Box 8126

GET DIRECTIONS

660 South Euclid Avenue

St. Louis  MO  63110

Frequently Asked Questions

Nephrotic Syndrome is not a disease itself, but rather a group of signs and symptoms that result from damage in the part of the kidney that filters blood (glomeruli).

Common symptoms include:

  • Foamy urine (called proteinuria) caused by protein “spilling” into the urine
  • Severe swelling in parts of the body, most noticeably around the eyes, hands, feet, and abdomen (called edema)
  • Weight gain due to a buildup of extra fluid
  • Fatigue
  • Loss of appetite
  • Low levels of protein in the blood (hypoalbuminemia)
  • Higher than normal fat and cholesterol levels in the blood (hyperlipidemia)

Nephrotic Syndrome can typically be diagnosed with a urine test.

Nephrotic Syndrome can be “primary” or “secondary” in nature.

Diseases that affect only the kidneys are called primary causes of Nephrotic Syndrome. Doctors often call these diseases “idiopathic,” which means that they arise from an unknown cause. Some of these diseases include:

  • Minimal Change Disease (MCD) – most common in children
  • Focal Segmental Glomerulosclerosis (FSGS)
  • Membranous Nephropathy (MN) – most common in adults
  • IgA Nephropathy (IgAN)

Secondary Nephrotic Syndrome is caused by an underlying, systemic condition like diabetes, lupus, HIV, and others.

The Kidney Health Gateway is a website owned and operated by NephCure Kidney International. The purpose of this website is to help patients with rare forms of primary Nephrotic Syndrome get connected to expert care and cutting-edge treatment options. By answering a few questions about you or your loved one’s condition, we can provide you with a list of clinical trials and/or expert doctors in your area.

If you have additional questions, please visit NephCure.org or email Info@NephCure.org.

 

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